As part of having a child with Down syndrome, I've sought out relationships with others who have been
in our situation. I've met with several families in our community, but have also sought out connections with people online. Through these relationships, I learned of a little girl who was born at about the same time as Tate. She was born with Down syndrome, but also with a major heart defect. She has been through several surgeries in an effort to repair her heart. Sadly, she passed away on Saturday. When I read about her passing, my heart broke for her parents. I cannot imagine losing a child feels like. Reflecting on her life and death also made me realize that although we will have challenges ahead for us, we have Tate here in our arms. And really, that's all that matters.
We had a great 4th of July. We spent the day with my dad and Emmy at their cabin. The weather was perfect and Avery caught her first fish! We watched fireworks from our house that evening (we can see the MSUM show from our backyard). The rest of the weekend was family time, much of it in our new pool. Tate either napped or played in the shade while the rest of us swam. As soon as his head control is stable, he'll join the rest of us. Hope you all had a great holiday weekend!
2 comments:
Just found your blog and the photos of your wonderful little boy Tate.
I noted your comment about Eden -it's so sad that for some of us our journey into Down's Syndrome is cut short. But from your comments I know that you understand that Down's Syndrome is not a problem just a difference and you appreciate the gift you have in Tate. Enjoy your journey together as a family.
Penny Green
Director
Down's Heart Group
www.dhg.org.uk
It sounds, and looks, like you had a great weekend. I don't always see Down syndrome even in Tate's pictures, I just see a happy baby who receives lots of love from his family. What more could you ask for at this stage of his life. Thanks for continuing to put in pictures - the first in his new little "4th of July" outfit is wonderful!
Love, Grandma Linda
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