7.06.2008

Wondering...

Our daily life often involves running errands... Target, the grocery store, etc. Usually I have the kids with me. Having a baby with you draws attention. If you've never tried walking around with a baby, you won't understand. But seriously, a half hour trip to Target typically involves at least 5 or 6 people stopping to look at Tate. Because it had been awhile since that phase with Avery, I'd forgotten what a people magnet infants are. The problem is this. I always wonder if the people know Tate has Down syndrome. Why do I care? Well, I don't really. I just wonder. Can they tell? I don't see it when I look at him, but I can see it when I look at his pictures. When the situation involves people I know but haven't seen since before Tate's birth, I wonder even more. Do they know? I know that I shouldn't focus on it, because really, I don't care whether people know or not. Either way, they typically don't bring it up or act any differently. I guess the wondering, for me, is just a phase that I have to go through. A phase I'm ready to see pass.

As part of having a child with Down syndrome, I've sought out relationships with others who have been in our situation. I've met with several families in our community, but have also sought out connections with people online. Through these relationships, I learned of a little girl who was born at about the same time as Tate. She was born with Down syndrome, but also with a major heart defect. She has been through several surgeries in an effort to repair her heart. Sadly, she passed away on Saturday. When I read about her passing, my heart broke for her parents. I cannot imagine losing a child feels like. Reflecting on her life and death also made me realize that although we will have challenges ahead for us, we have Tate here in our arms. And really, that's all that matters.
We had a great 4th of July. We spent the day with my dad and Emmy at their cabin. The weather was perfect and Avery caught her first fish! We watched fireworks from our house that evening (we can see the MSUM show from our backyard). The rest of the weekend was family time, much of it in our new pool. Tate either napped or played in the shade while the rest of us swam. As soon as his head control is stable, he'll join the rest of us. Hope you all had a great holiday weekend!

2 comments:

Penny Green said...

Just found your blog and the photos of your wonderful little boy Tate.

I noted your comment about Eden -it's so sad that for some of us our journey into Down's Syndrome is cut short. But from your comments I know that you understand that Down's Syndrome is not a problem just a difference and you appreciate the gift you have in Tate. Enjoy your journey together as a family.

Penny Green
Director
Down's Heart Group
www.dhg.org.uk

Anonymous said...

It sounds, and looks, like you had a great weekend. I don't always see Down syndrome even in Tate's pictures, I just see a happy baby who receives lots of love from his family. What more could you ask for at this stage of his life. Thanks for continuing to put in pictures - the first in his new little "4th of July" outfit is wonderful!
Love, Grandma Linda